In Memorium

With heavy hearts, we share the passing of our beloved colleague and friend, Rob Pattee, who left us on Friday, September 6, 2024, after bravely facing a battle with liver cancer.

Rob was more than an AlphaNet coordinator; he was a source of warmth, kindness, and unwavering support to his fellow Alphas in British Columbia and beyond. His compassion and dedication touched countless lives, and his absence will be deeply felt throughout the entire Alpha-1 community.

Rob’s legacy is one of care and service, and his impact will continue to resonate with all who had the privilege of knowing him.

A memorial service for family and close friends will be held on Friday, September 20, 2024. Those interested in attending virtually are invited to contact Mike Benn, Manager AlphaNet Canada, (mbenn@alphanetcanada.ca) by September 18 for service details.

Alpha-1 Canada and AlphaNet Canada Unite to Strengthen Support for the Alpha-1 Patient Community

July 30, 2024 – Alpha-1 Canada has been proud to collaborate with AlphaNet Canada for over a decade to meet the needs of the Canadian alpha-1 patient community.

In 2024, Canada became the first country globally to provide an Alpha-1 Proteinase Inhibitor through a national blood operator for severely affected alpha-1 patients. This milestone has unified the Canadian alpha-1 community like never before. After thoughtful reflection and with invaluable input from the community, Alpha-1 Canada and AlphaNet Canada have decided to merge their efforts, creating a singular, more vital organization to best meet the needs of patients, their families, and the broader healthcare community. This union will eliminate duplication of support services and amplify the voice of the patient community as we continue advocating for patient care at local, provincial, territorial and federal levels.

The new, integrated Canadian alpha-1 organization will be launched this fall. Under the AlphaNet Canada umbrella, the alpha-1 patient community will continue to have access to:

Peer-to-Peer Support: Alphas Serving Alphas
AlphaNet Disease Management and Prevention Program
Online and In-Person Education Events
Information and Recruitment for Alpha-1 Clinical Trials
Government and Stakeholder Advocacy at Local, Provincial, Territorial and Federal Levels
Healthcare System Navigation
Transplant Support and Coordination Assistance

A new and improved Canadian website will launch in September 2024 at www.alphanet.ca.

AlphaNet Canada is also excited to announce that Dr. Kenneth Chapman will serve as the organization’s Medical Director in partnership with Dr. Robert Sandhaus. Angela Diano will continue her advocacy for alpha-1 patients as the Executive Director, working alongside AlphaNet Canada’s Program Manager, Mike Benn, and the national team of AlphaNet Canada Coordinators.

Alpha-1 Canada and AlphaNet Canada’s social media accounts will merge; therefore, you can continue to follow us on Facebook to stay updated on our ongoing initiatives.

Thank you for continuing to support our efforts as we strive towards

IMPROVING THE LIVES OF ALPHAS.

For inquiries, please contact:

Mike Benn Angela Diano

mbenn@alphanetcanada.ca adiano@alphanetcanada.ca

Tel. 1.877.446.0848 Tel. 519.566.5839